Cystic Fibrosis (Adults)

The Adult Cystic Fibrosis Service at Glenfield Hospital is run by a wonderful team of specialists, who are here to provide excellent care for people with CF (Cystic Fibrosis).

The Adult Cystic Fibrosis Service at University Hospitals of Leicester cares for adults with cystic fibrosis. Based at Glenfield Hospital, we offer regular clinics and a special ward with private rooms. Our team helps with breathing, nutrition, and other support to meet each person’s needs. Find accessibility information, for the Cystic Fibrosis Unit at Glenfield Hospital, and Ward 16 at Glenfield Hospital.

We run regular outpatient clinics at Glenfield Hospital, all held on Clinic A in the Outpatients Department. 

  • General clinics
  • NTM (difficult bugs) clinics
  • Transition clinics
  • Diabetic clinics

Please allow up to an hour for your appointment, as you will meet with several team members during this time.

You’ll get a text reminder one week before your appointment. If you need to change it, you can use the link in the text or call us on 0116 250 2699. Please try to arrive on time. If you are running late, please call the Clinic A desk on 0116 258 3535.

You can find accessibility information on the AccessAble website.

We have a special ward just for people with cystic fibrosis. Here are some things you should know:

  • Rooms: We have 5 rooms that each have their own bathroom.
  • Wi-Fi: You can use the internet, and you can bring your own tablet, phone, or other devices.
  • What to bring: Please bring your clothes, toiletries (like soap and toothpaste), and any medicine you need.
  • Food: You will get a pass to eat at any of the LEaT shops or the restaurant. There’s also a fruit and vegetable stall near the main entrance. If you need special food, you can talk to the Dietitian, and we’ll try to help.
  • Exercise: There’s a gym on the ward, and a Physiotherapist may come to help you with exercises while you’re here.
  • Doctors and nurses: The Consultant and CF Doctor will visit you most days. The nurses will also come to check on you.
  • Visitors: Your family or friends can stay with you overnight if the nurses say it’s okay. They will talk to the Nurse in Charge to make it happen.
  • Leaving the ward: If you need to leave the ward, make sure to tell your nurse so we know where you are.
  • Stay safe: It’s important that you don’t touch or share things with other CF patients so you don’t accidentally spread infections.
  • Wristbands: You may need to wear a wristband for safety, but if you don’t want to wear it, you can leave it on your bed.

Contact us

The nurses are available from 8am to 5pm, Monday to Friday. You can contact the nurses directly on

Telephone: 0116 250 2699

Email: [email protected]

If you need any support outside of these hours, please contact Ward 16 on 0116 2583995

Phone:
0116 250 2699
Adult Cystic Fibrosis splash logo

Meet Jimmy, Work Forwards Programme Manager at the Cystic Fibrosis Trust. Jimmy is in his early 40s and has CF. Having grown up in Leicester, you may have seen him on ward 16 or at an outpatient clinic. He has worked in the charitable sector for over a decade and now supports people living with CF tackle the issues around balancing CF with employment and work.

The Work Forwards programme was launched in 2022 to help people impacted by cystic fibrosis (including family members and partners) around issues relating to securing and retaining work in a way that works for the individual. Funded by The National Lottery, the Work Forwards programme can help adults in the CF community in a variety of ways. Whether you are looking for work or considering a change in career and need some support and guidance around job searches, CV writing and interview skills, or if you are already in work and need some guidance around how to bring up the subject of asking for some reasonable adjustments to your role with your employer, to make managing CF or attending hospital appointments easier and more manageable. 

Jimmy also runs his own business and has helped to launch a large number of start-ups across the East Midlands through his work in the charitable sector. He is keen to use this experience and knowledge to help people within the CF community who have a hobby or interest that could be turned into a business.

We have a dedicated employment adviser who has a fantastic wealth of experience and who is incredibly passionate about supporting people within the CF community with any challenges they have around work. We’re keen to help as many people as possible and so we don’t limit this support to just people with cystic fibrosis, but the same employment support is available to siblings, parents, carers and loved ones.

The CF Trust has been helping people with CF for launch their business ideas over the past 10 years through the fantastic Helen Barrett Bright Ideas Award. We’re now also beginning to expand this support by offering 1-2-1 business planning sessions and dedicated online webinars from business professionals to help ensure the CF community has access to the resources to build a sustainable business.

Jimmy

Find out more about how the programme can help you by visiting Work Forwards.

Cystic Fibrosis Winter and Spring Newsletter (639kB pdf)