Cystic fibrosis (adults)

The Adult Cystic Fibrosis Service at Glenfield Hospital is run by a wonderful team of specialists, who are here to provide excellent care for people with CF (Cystic Fibrosis).

Cystic fibrosis is a genetic condition that affects the lungs and digestive system, making it harder to breathe and absorb nutrients. Our adult cystic fibrosis team provide specialist care for people living with CF.

Based at Glenfield Hospital, we offer regular outpatient clinics and a dedicated ward with private rooms. Our team supports patients with breathing, nutrition, and personalised care to help manage symptoms and improve quality of life. Find accessibility information, for the Cystic Fibrosis Unit at Glenfield Hospital, and Ward 16 at Glenfield Hospital.

We run regular outpatient clinics at Glenfield Hospital, all held on Clinic A in the Outpatients Department.

  • General clinics
  • NTM (difficult bugs) clinics
  • Transition clinics
  • Diabetic clinics

Please allow up to an hour for your appointment, as you will meet with several team members during this time.

You’ll get a text reminder one week before your appointment. If you need to change it, you can use the link in the text or call us on 0116 250 2699. Please try to arrive on time. If you are running late, please call the Clinic A desk on 0116 258 3535.

You can find accessibility information on the AccessAble website.

We have a special ward just for people with cystic fibrosis. Here are some things you should know:

  • Rooms: We have 5 rooms that each have their own bathroom.
  • Wi-Fi: You can use the internet, and you can bring your own tablet, phone, or other devices.
  • What to bring: Please bring your clothes, toiletries (like soap and toothpaste), and any medicine you need.
  • Food: You will get a pass to eat at any of the LEaT shops or the restaurant. There’s also a fruit and vegetable stall near the main entrance. If you need special food, you can talk to the Dietitian, and we’ll try to help.
  • Exercise: There’s a gym on the ward, and a Physiotherapist may come to help you with exercises while you’re here.
  • Doctors and nurses: The Consultant and CF Doctor will visit you most days. The nurses will also come to check on you.
  • Visitors: Your family or friends can stay with you overnight if the nurses say it’s okay. They will talk to the Nurse in Charge to make it happen.
  • Leaving the ward: If you need to leave the ward, make sure to tell your nurse so we know where you are.
  • Stay safe: It’s important that you don’t touch or share things with other CF patients so you don’t accidentally spread infections.
  • Wristbands: You may need to wear a wristband for safety, but if you don’t want to wear it, you can leave it on your bed.

Contact us

The team is available from 8am to 5pm, Monday to Friday. If you need support outside of these hours, please contact Ward 16 on 0116 258 3995.

The quickest and easiest way to contact the team during working hours is by completing the Accurx form linked below.

Telephone: 0116 250 2699

Email: [email protected]

Contact the team via the online form (Accurx)